We also have come closer to setting a time to do a skin patch biopsy. The materials needed have been collected and the pathologist located, who will also be working with a pathologist who worked on the project with the dogs. The team will be sending pictures of the slides for their examination. All that is left to do on this, besides scheduling, is a little more back and forth between the docs on the fine details. We hope to only do this once.
In the meantime, we continue to go to work, go to multiple appointments, therapy, and try to live a "normal" life. Asher again is showing great strides, thanks to his SMOs, in PT however has taken a backslide in OT. His hands are weaker. He also been more behavioral this week and we have the challenge of determining if he is doing this because of his difficulties, possibly pain, disease progression, or just being a 4 year old boy. All are very possible.
Lastly, I just want to thank each and everyone of you for your love and support. We could not have gotten this far without you. Your willingness to simply share our story has made a big impact on our lives. Thank you! We could not be more grateful!